Endometriosis is often called a “silent disease.” It affects nearly 1 in 10 women of reproductive age, yet for Black women, the silence is even louder. For years, their pain has been minimized, their symptoms dismissed, and their voices overlooked in the medical system. Today, it’s time to change the narrative—because breaking the silence around endometriosis can save lives and restore quality of life for countless women.
What Is Endometriosis?
Endometriosis is a condition where tissue similar to the lining of the uterus grows outside of it—on the ovaries, fallopian tubes, bladder, or other organs. This misplaced tissue responds to hormonal changes, causing chronic inflammation, severe pain, and sometimes infertility.
Common symptoms include:
- Intense menstrual cramps
- Pain during intercourse
- Chronic pelvic pain
- Heavy or irregular bleeding
- Fatigue and digestive issues
The Hidden Burden for Black Women
Historically, endometriosis has been underdiagnosed in Black women. Myths that Black women are less likely to develop the disease—or that they have a higher pain tolerance—have contributed to years of misdiagnosis or delayed care.
Instead, many are often misdiagnosed with fibroids, another condition disproportionately affecting Black women. While fibroids are indeed common, this narrow view leaves many struggling with untreated endometriosis for years.
The Cost of Silence
Living with undiagnosed or untreated endometriosis doesn’t just impact physical health—it affects every area of life:
- Emotional well-being: Constant pain often leads to anxiety, depression, and feelings of isolation.
- Career impact: Missed workdays and limited productivity due to flare-ups affect professional growth.
- Family planning: Endometriosis is one of the leading causes of infertility, leaving many women blindsided when trying to conceive.
Breaking the Barriers
1. Advocacy & Education
Black women must be empowered to recognize symptoms and push for answers. Community conversations, support groups, and digital platforms are vital in spreading awareness.
2. Seeking Specialists
Gynecologists who specialize in endometriosis or minimally invasive surgery are key to accurate diagnosis. Don’t settle for dismissal—seek second opinions when needed.
3. Storytelling as Healing
When Black women openly share their endometriosis journeys, they not only empower themselves but also validate the experiences of others. Silence breaks when stories are told.
4. Research & Representation
More research focused on how endometriosis manifests in Black women is needed. Inclusion in clinical studies ensures better treatment options tailored to diverse experiences.
A Call to Action
Endometriosis does not discriminate, but the healthcare system often does. Breaking the silence for Black women means dismantling harmful stereotypes, amplifying voices, and demanding equitable care.
If you are a Black woman experiencing painful cycles, know this: Your pain is real. Your voice matters. And you deserve answers.
Real Women Atlanta stands with Black women everywhere, committed to lifting the silence and shining a light on women’s health issues that have too long been ignored.
Written by Temeka Young
